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Who We Are

NDF is a non-profit organization whose goal is to find a cure for neuromuscular diseases, including Hereditary Inclusion Body Myopathy (HIBM).

Since the formation of NDF in 2006, our renowned researchers around the globe have been working to find cures for neuromuscular diseases such as HIBM. Our doctors and scientists are finding ways to halt these diseases' progression and actually improve muscle function in people already suffering the effects of these diseases.

2008 Board of Directors

Doran Adhami
Michael Banayan
Robert Becher
Lonni Delshad
Catherine Gabbay
Larry Gold
Nir Hanien
Haleh Mehdizadeh
Gila Michael
Halston Mikail
Kathy Shenassa
Emmanuel Yashari

Scientific Advisory Committee

Wayne Grody, M.D., Ph.D.
UCLA School of Medicine
Department of Pathology &
Laboratory Medicine, Human Genetics, Pediatrics
  Siavash Kurdistani, M.D.
UCLA School of Medicine
Department of Pathology &
Laboratory Medicine, Molecular Biology

Research Committee

Zohar Argov, M.D.
Senior Academic Physician
Department of Neurology
Hadassah University Hospital
Jerusalem, Israel
  William A. Gahl, M.D., Ph.D.
National Institutes of Health
Office of Rare Diseases
Head, National Human Genome Research Institute
Bethesda, Maryland
Richard A. Gatti, M.D.
UCLA School of Medicine
Department of Pathology & Laboratory Medicine
Macdonald Research Laboratories
Los Angeles, California
  Wayne Grody, M.D., Ph.D.
UCLA School of Medicine
Divisions of Medical Genetics & Molecular Pathology
Department of Pathology & Laboratory Medicine
Pediatrics and Human Genetics
UCLA School of Medicine
Los Angeles, California
John. J. Nemunaitis, M.D.
Executive Director
Mary Crowley Medical Research Center
Dallas, Texas
  Ichizo Nishino, M.D., Ph.D.
National Center of Neurology and Psychiatry (NCNP)
Director, Department of Neuromuscular Research
National Institute of Neuroscience
Tokyo, Japan