NDF Summary
We are a non-profit organization whose goal is to find a cure of neuromuscular diseases, including Hereditary Inclusion Body Myopathy (or HIBM).
HIBM is a rare and debilitating form of muscular dystrophy that dehabilitates young adults, robbing them of their ability to walk. While the recessive form is most common in Middle Eastern Jews, HIBM can affect anyone; and there is NO known cure.Support NDF today and help us move more quickly toward development of an effective treatment.
Are You A Carrier?
Hereditary Inclusion Body Myopathy is a genetic disease that is found in all communities but is most common among people of Middle Eastern Jewish Heritage.
HIBM is a progressive degenerative disease that causes the arm and leg muscles to slowly stop working. As a result of the identification of the gene that mutates into HIBM, a painless cheek swab of saliva allows us to test for HIBM, which results in an essential tool in genetic counseling. However, there is currently no cure for HIBM.
June 5, 2008 Fundraiser
Get Involved...
March 20, 2010 - CURIOUS III
Thank you for your continued support! When you give a gift to the Neuromuscular Disease Foundation (NDF), you are investing in research that may someday lead to the discovery of a cure of this disabilitating disease.
All of the work that you see here on our website, and everything that the Neuromuscular Disease Foundation does, is made possible through the generous support of good people like you. Your support is vital to our work!
Thank you to all those that attended and supported CURIOUS III.
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